Hydrocephalus : Some scary situations are better faced with someone else walking the journey alongside you.

Hydrocephalus : Some scary situations are better faced with someone else walking the journey alongside you.

The arrival of a new baby, a new member of your family, is one of the most exciting times in a new mother/father’s life.

I remember when I was pregnant. There was one constant prayer for each one of my children from the time of knowing of their existence. I wanted nothing more than for them to be healthy, have all ten toes and all ten fingers. Nothing else mattered more to me than that. I did everything I had to, from my side to ensure they were healthy. I ate the right foods, drank my folic acid and had my regular checkups at the Gynaecologist to check that they were developing as was expected.  I don’t think any mother, in the same position, would want anything less for their unborn child.

This is probably the reason why being told that your child has a condition like Hydrocephalus cannot be an easy thing to hear. Even more unbearable, would be to hear that your precious little newborn will need brain surgery to treat (not cure) this heartless condition. Being an adult diagnosed with Hydrocephalus, it wasn’t easily digested by me so I’m safely basing it on that.

The one thing I do have to say to anyone who has just had this news delivered to them “Stop for a minute…breathe and take comfort in knowing you are not alone. I know it’s a scary time, a time when you probably have a myriad of questions racing through your head…breathe“.

The good news for parents, is that there are others who have gone through this “successfully“. You have a wealth of resources available to you. The aim of my starting this blog segment is to draw on the experiences of others so that you can have a place to go to, to find some of the help/answers you need. You will not be the first to ask the questions you have floating around in your head. The feelings you have, though unique to you, are all normal and part of the process.

I will be posting regular updates on the research I’ll be doing, based on the experiences of other parents like yourself.  This is part of an idea I had posted about some time ago, with the aim to Give a voice to the vulnerable Hydro warriors among us and provide help/support to the parents who love and care for them.

I hope you find the answers you are looking for and that I can help provide a little shred of comfort or hope along the journey.

Here…take my hand and let me walk this journey with you…I might not have all the answers but I do promise to provide a level of sanity should you need it.

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Thank you for taking the time to read.

I blog about Hydrocephalus to give a voice to the millions of people around the world with this condition.  As much as these experiences are unique to me, I’m sure others have experienced it too.  My aim…to shine a light on it and raise awareness – simple and challenging at the same time but worth it!

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