Hydrocephalus: Being around people who understand the language you’re speaking

As a person living with Hydrocephalus, be it yourself or someone close to you affected by this condition, it’s easy enough to understand the medical terminology.  Well, at least better than anyone who is just an “acquaintance” of this condition. I remember when I was first diagnosed and heard...

Hydrocephalus : I reckon these doctors need an intervention!

I’ve spoken before about the concerning aspect of the medical professionals, who treat Hydrocephalus patients, who are not on the same page.  There are just too many people walking around without proper aftercare or dealing with medical staff who are uneducated in terms of Hydrocephalus. I myself am one...

Hydrocephalus : Saying no to treatment the only way I know how…

Being prescribed antidepressants a few weeks back to control my headaches more than anything else, I put starting them off because of my Hysterectomy surgery. (Though, I can’t say I was all for the idea either). I didn’t want the drugs to interfere with each other. I’m no pharmacist...

Hydrocephalus : My Issue Is Scar Tissue…maybe…

Abdominal Adhesions/Scar tissue “Abdominal adhesions are bands of fibrous tissue that can form between abdominal tissues and organs. Normally, internal tissues and organs have slippery surfaces, preventing them from sticking together as the body moves. However, abdominal adhesions cause tissues and organs in the abdominal cavity to stick together.”...

Imagine having a way to communicate your invisible illness to those around you visually…

This morning I woke up at 4 am with the start of an excruciating episode of stomach pain (only too familiar to me). I lay waiting to see if it would escalate while praying that it wouldn’t. However, that was a futile prayer because sure enough, it was one...